I am desperately raising money to help my baby boy, Adrian Popescu get the treatment he needs to cure his rare disease. Adrian is now 7 months old , since birth he has remained hospitalized.
He suffers from a very rare disease – he cannot breathe or eat on his own, both these functions are currently operated by a machine, he has to be under 24h hospital supervision and could not survive without the apparatus.
Some of Adrian’s muscles are very weakened, he cannot lift his head or fully move his hands. Adrian is a very smiley and happy baby, mentally fully there and developing like any other baby at his age. Only 5 reported cases like Adrian’s are know to date. Numerous tests and examination have not been able to draw sufficient diagnosis and recently we were told, that the diagnostic/treatment possibilities in Romania have been exhausted. There is no specialist centre in the country that would be able to help, we are therefore searching for such possibilities outside of Romania.
We have made an appeal for treatment to the Dubowitz Neuromuscular Centre, part of the Great Ormond Street Hospital in London. It’s a leading clinical and research centre that specialises in neuromuscular disorders providing clinical assessments, diagnostic services, advice on treatment and rehabilitation. As you can imagine this kind of treatment is extremely expensive. Adrian’s medical transport from Romania to London itself goes well into the 5 digit figures, the cost for treatment and everything that goes with it is unimaginable.
We need the help of others to make his special transport to London and initial consultation possible. We would be very grateful for any donation, even the smallest help would mean a lot to all of us.
Please pass this on to anyone who you think would be able to help – besides financial support we are also looking for as much expertise advice as possible, as said it is a very rare disorder so any contacts are very helpful.I was told that paypal is the easiest way for others to help donate,so I’ve managed to open an account.If there is any other way you would prefer,please let me know.
I am not used to the internet so much,the following link was given to me by PayPal : Adrian’s Cause .Hope this is the right donation link.